LBDA Resources
The LBDA is a non-profit organization that is dedicated to supporting people with LBD, their families and caregivers while promoting LBD research. The University of Florida is proud to be one of 20 LBDA Research Centers of Excellence as the Fixel Institute is home to four LBD specialists and ongoing LBD-related research.
Facing LBD Together: An Introduction to Lewy Body Dementia
Lewy Body Dementia: Information for Patients, Families and Professionals
UF LBD Virtual Caregiver Support Group
Join our monthly virtual support group for caregivers of people living with dementia with Lewy bodies and Parkinson disease dementia receiving care at the University of Florida.
Support group details: Fourth Friday of each month from 2-3PM EST
UF Quarterly Newsletter
The LBD Life Lab at UF creates a quarterly newsletter which highlights ongoing research opportunities, introduces our team and summarizes Florida resources that could be useful to people with LBD and their families.
Please connect with our team if you would like to request a released issue of our newsletter by emailing DLB-support@neurology.ufl.edu.
Additional resources
- The Michael J. Fox Foundation for Parkinson’s Research
- While the Foundation’s primary goal is to support those living with Parkinson’s, they have wonderful resources that could be helpful.
- Ask the MD: What Is Lewy Body Dementia?
- Dementia with Lewy Bodies: In the News and In the Clinic
The Brain Health Equity and Dementia Prevention Lab
This lab, in collaboration with UF Healthstreet, offers cognitive testing for uninsured people or those who cannot afford it. Consider making an appointment with the Neurocognitive Screening Initiative if you have cognitive complaints.
Central Florida Lewy Body
Though unaffiliated with our lab and clinic, Sue Bouder of CFLB offers support groups, educational workshops and fun -filled sessions for both people with LBD and their carepartners.
En espanol – Lewy Links: Enlazándote a recursos
La LBDA es una organización sin fines de lucro que apoya a las personas con LBD, sus familias y cuidadores, y promueve la investigación sobre LBD. La Universidad de Florida se enorgullece de ser uno de los 20 Centros de Excelencia de Investigación LBDA. El Instituto Fixel es el hogar de cuatro especialistas en LBD y de investigaciones en curso relacionadas con la LBD.
Grupos de apoyo telefónicos en español
Los grupos de apoyo de la Alzheimer’s Association
son realizados por facilitadores capacitados y son
un lugar seguro para personas que viven con
demencia y sus cuidadores
Recursos de la Alzheimer’s Association
Algunos de nuestros recursos favoritos sobre la demencia general
- Pasos para el diagnóstico
- 10 Señales y Síntomas Tempranos del Alzheimer y la Demencia
- Ayuda y apoyo para que nadie tenga que enfrentarse solo al Alzheimer
- Si tiene preguntas, comuníquese con la línea de ayuda marcando 1-800-272-3900
Recursos de la Parkinson’s Foundation
Algunos de nuestros recursos favoritos sobre preguntas de movimiento
- Una lista de cosas como podcasts, videos y libros
- Solicite un kit de seguridad hospitalaria que uda a las personas con Parkinson a ser su propio defensor para obtener una mejor atención durante su estancia hospitalaria
- Si tiene preguntas, comuníquese con la línea de ayuda marcando 1-800-427-4636 opción 3 para español