Exploring the experiences of those living with Lewy Body Dementia

The LBD Life Lab at UF explores the experiences of people living with Lewy body dementia from diagnosis to end of life. Our interdisciplinary team uses both qualitative (experience-based) and quantitative (data-based) approaches to understand the lived experiences of individuals with Lewy body dementia and their caregivers. The goal of our research group is to improve the lives of those affected by Lewy body dementia through purposeful conversation and innovation.

Recruiting Research studies

PACE-DLB This study aims to understand what changes might predict the end of life in people with dementia with Lewy bodies (DLB).

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1Florida ADRC Have the opportunity to try new medicines to research their effectiveness with slowing down, stopping, or preventing the disease.

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Tele-heath in LBD This study will pilot an LBD tele-health program. We will virtually offer interdisciplinary care which will include neurology, physical therapy, occupational therapy, speech therapy, social work and nutrition.

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EEG in DLB and healthy adults This study wants to understand how dementia with Lewy bodies (DLB) changes brain wave and muscle activity during movement. EEG records electrical activity in the brain (brain waves) from a cap we put on your head.

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Life space mobility in LBD This study wants to understand how to improve patient and caregiver related health outcomes with a focus on mobility.

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