
Exploring the experiences of those living with Lewy body dementia
The LBD Life Lab at UF explores the experiences of people living with Lewy body dementia from diagnosis to end of life. Our interdisciplinary team uses both qualitative (experience-based) and quantitative (data-based) approaches to understand the lived experiences of individuals with Lewy body dementia and their caregivers. The goal of our research group is to improve the lives of those affected by Lewy body dementia through purposeful conversation and innovation.
Recruiting Research studies
1Florida ADRC Have the opportunity to try new medicines to research their effectiveness with slowing down, stopping, or preventing the disease.
Tele-heath in LBD This study will pilot an LBD tele-health program. We will virtually offer interdisciplinary care which will include neurology, physical therapy, occupational therapy, speech therapy, social work and nutrition.
EEG in DLB and healthy adults This study wants to understand how dementia with Lewy bodies (DLB) changes brain wave and muscle activity during movement. EEG records electrical activity in the brain (brain waves) from a cap we put on your head.
NINA MEG Study Contribute to cutting-edge research aimed at understanding the complexities of aging and neurodegeneration
Dementia Caregiver Interview Study Study seeking seeking adult child and spousal caregivers of people living with dementia
Lab News
Shellie-Anne Levy receives Alzheimer’s Association fellowship to expand dementia research
Dr. Shellie-Anne Levy was awarded a 200K grant to study the influence of risk factors in symptom progression of LBD.

Studies assess quality-of-life factors for Lewy body dementia patients, caregivers
Two new papers led by University of Florida researchers examine factors that influence quality of life for patients with moderate-to-advanced Lewy body dementia and their caregivers.

Examining the under-diagnosis of DLB in Black adults
Drs. Armstrong and Barnes review pre-existing literature and share their findings in an article published February 2024. They explore clinician bias and the structural and systemic impacts that could lead to under-diagnosis.
