Multi-Stakeholder Engagement for Interdisciplinary Telehealth in Lewy Body Dementia


This study aims to adapt the patient-centric specialized interdisciplinary care model, the Neuromedicine Service and Science Hub model, into a Lewy body dementia (LBD) telehealth model. The overarching goal of this study is to improve patient and caregiver health outcomes by increasing access to specialty care for individuals with LBD and their caregivers. The objective of the study is to convert this in-person patient-centric interdisciplinary care model to a virtual platform using stakeholder engagement.


To participate, you must be:

  • A person diagnosed with LBD and care partner willing to participate together
  • Diagnosed with mild to moderate dementia
  • Have internet access with Zoom
  • Fluent in English


Pairs and healthcare providers (HCP) will participate in a series of in-depth, semi-structured interviews conducted over the phone to discuss their priorities and expectations of a specialized interdisciplinary telemedicine model of care (tele-neurohub). A pilot run of the tele-neurohub visits will be conducted by the HCP. Following this all stakeholders will be interviewed again to determine the factors that would support the use of the tele-neurohub model, technological or communications concerns that arose and limitations of the tele-neurohub visits.

Contact Information

Noheli Bedenfield, MHA

Study Information Flyer

Telehealth in LBD Recruitment Flyer

Principal Investigator

Bhavana Patel, DO